I cannot begin to tell you how overjoyed I am to be able to write this story. You cannot see my tears of joy, my concern that I do all of these new dietary and supplemental changes correctly, and the feeling that overwhelms me … success, love, admiration for my child, all of that and more!
Yesterday, I did another ATEC (Autism Treatment Evaluation Checklist) score on Chris. I decided to do this because my son said, “What is that?” and “What’s it do?” … Not only is he picking up words (he has now got about 25-30 words, give or take) but he is using a couple full sentences. To look at him, you would hardly be able to believe it’s the same child.
The ATEC score was 58. His baseline score was 125 on January 26th, followed by a score of 69 about a week ago. In mathematical thinking, that is a 67 point drop, which takes him out of severe autistic range and into mild range … I have gotten my child back.
Yes, this diet has only been implemented for three weeks, and it’s rough. No colorings, additives, sugars, starches, preservatives … No milk … No wheat … No rice. His diet is in stages, and it’s limited even more so because he is still in the beginning of this process. But, it’s helped bring my child back.
Yes, he takes many supplements, multiple times a day. Nu-Thera with P5P, cod liver oil, vitamin C, magnesium mlycinate, Enzyme Complete DPP-IV, melatonin, zinc … and Zantac at night for acid reflux. It’s a lot, and more is about to be added shortly. But, it’s brought my child back.
Three weeks ago, my son didn’t use language. He had two words, “car” and “go”, which he used without reason or meaning. The medical term for his use of language is echolalia, but, I felt blessed to just hear something from him besides his shrieks and cries. I had no ideal my child’s life was about to be drastically changed for the better … in fact, I was fairly skeptical about the whole thing, honestly. Thank goodness, I went with my instincts and gave it a go.
The first week of the diet, we saw less aggressive behaviors and far fewer accounts of him stimming. His eye contact improved greatly, and he was able to sit for more than a second to attend to a task.
In the second week, he began to pick up words. Car and go remained (and were used in context!) and he added cup, cow, pig, ball, cat, dog, train, tape, CD, T.V., see, Chris, Sarah, Mom, Dad, baby, shoes, eye, ear, nose, mouth, and teeth. He also initiated an embrace for the first time in his life, TWICE in the same day. He still does this, and God knows I want to cry with joy everytime he does.
In this third week, he has picked up even more words … and I am so pleased to say that I couldn’t even begin to list them. He now will ask questions, “What’s it do?” or “What is that?” … as well as responding, “Right there!” or “Over there!” He will put my shoes on and say, “See Chris’s shoes?!” and will tell me, “Chris’s CD!” to tell me he wants to watch one of his movies.
He is following directions very well, and doesn’t for once seem “cloudy” when asked to do something … and will COMPLETE the task he is asked to do! Last night, I made him special cupcakes (really they are muffins, but I thought he might like calling them cupcakes for a special treat for him) and he waited for me to say it twice and then says, “Cupcake! MMMM! Good food!!!” and I laughed. That’s my boy!
I would have never imagined my son could come this far so quickly. His sleep is much better, and he no longer has terrible under-eye circles . He is gaining weight finally, and seems so alert. All of my struggles to do this diet and supplements have more than paid off, that’s certain. When he looks into my eyes and asks me something I want to drop to my knees and thank God for that moment … because I never thought I would hear him speak again, let alone ask me a question!
When my son first had autistic symptoms, I cried for so long and so hard because my child seemed to have been taken in the night … and replaced with something resembling a zombie of sorts. I wanted to change things so badly, go back and figure out what caused this to happen to him and do it all over the “right” way. I felt such utter despair and heartbreak …. I felt like an utter failure as a parent, and I felt responsible for what happened to him. I felt that I should have KNOWN the cause and kept it from happening to my beautiful baby boy.
I cannot change what happened. I cannot change the fact my son has autism. He will never be “neurotypical” in its entirety. He will still have issues in developing friendships and relationships … he will always have issues about being in places with lots of people … his eye contact will never be totally normal … he will still struggle with being able to tell someone how he feels … and other things as well.
But, I thank God that he is coming back to me like he is. So what if he doesn’t have perfect eye contact?! After I said, “I love you Chris” to my son last night, he responded “love you” and kissed me without being prompted. My heart rejoices, and it’s something I never thought possible to hear from my little angel. And, I did cry once again. Not from pain and anguish as before, but in joy and happiness.
Thank you God, for allowing me to have my son back. I will never take a single word or question he asks for granted. They are themselves gifts from God. Just like my son.
SCD Diet and Autism
The SCD is very rapidly becoming the official treatment for autistic children and is giving dramatic results for those who follow it carefully. For autistic children, it is best to use a modified version of the SCD and not the SCD starter diet for adults. When beginning the SCD for children, parents also need to be aware of the results to expect. To learn more and get lots of recipes, go to www.pecanbread.com.
Midas Gold Pancakes/Or Waffles
- 1 cup almond flour
- 4 eggs
- 2 tablespoons honey
- 1 teaspoon vanilla
- 1/4 teaspoon salt
- 1/4 teaspoon baking soda
Beat eggs in a mixing bowl with a large whisk. Add honey and vanilla and beat until smooth. Add almond flour, salt and baking soda and mix well with whisk. Pour in hot waffle iron and cook according to waffle iron instructions or cook like pancakes.